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Where You Can Start: How to Get Involved:
If you were directed to Survey #2, please click here or scroll down.

Please participate in these three surveys

  1. Devastating Brain States: Definitions and Treatment Options

    2. Confused about such terms as "Brain Dead", Coma, PVS (Permanent Vegetative State), and the Minimally Conscious State? Do you know what you would want for yourself or your loved ones in such states?

    Test your knowledge as you learn about the functional abilities and potential for recovery of patients who suffer from several severe brain states. Receive instant feedback so you can compare your answers with those of professionals who deal with end-of-life challenges.

    Express your opinions about treatment options that already exist, or could exist if laws were to change... for yourself, for someone you love, and for our entire society. The results of this survey will reveal if there is a consensus about what treatment people want if they are informed about the biologic and social aspects of existence in Devastating Brain States.

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  2. Is it Moral to Permit Natural Dying for patients with end-stage dementia?

    Is it ever moral to hasten dying? Perhaps it is more appropriate to ask, Is it ever humane to insist on prolonging the natural process of dying? Can we trust others to judge our situation and make the right decision when our time comes? Might some decision-makers be biased? If we cannot trust others, should we consider a more objective clinical standard embodied in new laws? What are the risks of such a radical change in the way our society views such patients?

    Your opinion is important! Your answers, along with those of others, are part of a national poll. We hope its results will stimulate discussion about how our society deals with the challenges of advanced stages of Alzheimer's dementia and related diseases.

    Your personal answers to this survey's questions can be part of your way to let others know what you want for yourself if someday, you cannot speak for yourself. You can select certain pages to print and attach them to your other Advance Directive documents. (To print, use landscape orientation)
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  3. Different Ways of Dying: How Peaceful are they?

    The way we die is a subject that will affect us all. Yet, knowledge about how peaceful various ways are is currently scarce. This survey asks those who have direct or professional experience with dying people to rate various ways of dying on a scale whose end points are "causes extreme pain and suffering" and "is totally comfortable and peaceful."

    Results from this survey may help many people exercise choice to make a significant difference in the last chapter of their lives and even beyond (as experienced by surviving loved ones). A practical example: "If the last chapter of my life is marked by difficulty breathing and swallowing so that I risk contracting pneumonia by breathing in food or liquid, can I choose a different way to die that is likely to be more peaceful?"

    This survey began in a table-top, analogue form. It will soon be available in digital format for wider distribution.

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